Joy Lwangu - her SPS was undiagnosed for 15 years.

Amplifying the Rare Voice

SPSRF Newsletter May 2021 Here it is in print! For those who missed it, we were featured on the front page in the Washington Post. Yay! We’ve been getting comments from people all over the world offering support and sharing similar struggles. The response has been enormous and the connections priceless. RESEARCH UPDATE: This extraordinary…