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The Stiff Person Syndrome Research Foundation
Breaking through barriers to find a cure.
The Stiff Person Syndrome Research FoundationThe Stiff Person Syndrome Research Foundation
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February 26, 2022

Why We #Move4Rare

Fundraiser, RArE Moments, Stiff Person Syndrome, Traversing TassieBy Tara ZierFebruary 26, 2022

There is a history behind #Move4Rare which brings us to this moment. With SPS, many of us have difficulty moving. We use walkers, wheelchairs, and some of us are bedridden. So why would we start a movement to move when we cannot? Mary Ann told us a terrifying story. When startled one of her legs…

SPS Awareness Day Soundbath

Move4Rare

Autoimmune disease, Newsletters, Stiff Person SyndromeBy Tara ZierFebruary 26, 2022

SPSRF Newsletter February 2022 Want to know what it’s like to swim, bike, and run 321.6 miles over three days? 📽 Watch our debrief with Mary Latza after she dedicated her Herculean performance in Ultraman Florida to her great-niece Isla, diagnosed with SPS at just 18 months old, possibly the youngest SPS patient in the…

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