The SPSRF is racing toward a cure. Our fuel? YOU.
Leading up to Giving Tuesday, November 29th, I’m asking everyone who is able to launch a Facebook Fundraising campaign to support our efforts. Throughout this year our supporters have raised an average of $704 per Facebook Fundraiser! This week, in a bit of excellent news, Meta announced that it will match monthly donations made on Facebook up to $100 until they hit $7 million.
Whether you’re on this SPS haul, or part of a pit crew, we need you on our team this November. Individually we are small in numbers; together we are unstoppable.
Fire Up Facebook Fundraising
SMILE! 😁 You Can Donate To The SPSRF While You Shop On Amazon
Does your company match charitable donations?
Check with your employer to get started doubling (and sometimes tripling or quadrupling!) your donation to The SPSRF!
Networking With Neurologists
Meet Steven S, One Tough Mudder
Diagnosed with SPS in his 60’s, and still one Tough Mudder, our inaugural Patient Story blog author Steven responded to Describe How SPS Has Changed You, “Wow, loaded question. Everything. It has changed everything.” Read more here.
Tara on Parents As Rare
“We have become closer through this.” The SPSRF Founder, Tara Zier, talks to Dadvocate Adam Johnson about being a rare parent. “I have a great relationship with my kids. It has been tough at times but we work through it. We support each other. And they support each other which warms my heart.” Listen here to the Parents As Rare podcast.
It’s Not Too Late!
If you have been diagnosed with SPS and tested positive for any of the neural antibodies (i.e. GAD65, Glycine receptor, DPPX, or amphiphysin), you could participate in the IGNITE study conducted at Stanford University.
Thank you for reading all the way to the end of this month’s newsletter! You’ve made it this far … go ahead, set up that Facebook fundraiser on behalf of The SPSRF using the instructions here. If you don’t do Facebook, please donate. ❤️