top of page

This year’s symposium was packed with insightful presentations, engaging discussions, and networking opportunities. We hope the sessions shared below inspire you, provide new insights, and offer practical tools to manage SPS.

Every Voice Is Heard

For the first time, the symposium was extended to a second day, dedicated to breakout sessions focusing on personal experiences, alternative therapies, and practical strategies for managing SPS. This setting was designed to foster intimate and supportive exchanges among patients, caregivers, and families, to ensure that every voice is heard and valued.

From Invisible to Invincible

Download the Slides
Summary Sheet

Presenter: 
Tara Zier, DDS, Founder & CEO, The Stiff Person Syndrome
Research Foundation

 

Research in SPS: Past, Present, and Future

Download the Slides
Summary Sheet

Presenter: 
Scott Newsome, DO, MSCS, FAAN, FANA
Professor of Neurology
Director, Johns Hopkins Stiff Person Syndrome Center
Director, Johns Hopkins Neuroimmunology and Neurological
Infectious Disease Fellowship Program

Hematopoietic Stem Cell Transplant in SPS

Download the Slides
Summary Sheet

Presenter: 
Amanda Piquet, MD
Associate Professor of Neurology
Director, Autoimmune Neurology, University of Colorado
Neuroimmunology, Neuroinfectious Disease &
Neurohospitalist Sections
University of Colorado School of Medicine

Exploring the Fundamentals of SPS

Download the Slides
Summary Sheet

Presenter: 
Duarte Machado, MD
Director of Program Excellence and Recognition, Chase
Family Movement Disorders Center, Hartford HealthCare

Panel Discussion - SPS International Registry

Summary (Coming Soon)
Summary Sheet

Panel Members:
Registry Manager Registry Steering Committee Members:

  • Jacqueline Kraska,

  • Shannon Gibbons,

  • Scott Newsome,

  • Moira Scully Papp,

  • Amanda Piquet,

  • ​LaraVujovic

  • ​Tara Zier

Wrap Up  - Symposium Panel Discussion

No Slides Available
Summary Sheet

Panel Members:

  • Scott Newsome, DO, MSCS, FAAN, FANA

  • Amanda Piquet, MD

  • Duarte Machado, MD

  • Tara Zier, DDS

2024 SPS Symposium
Presentation Summary Handouts

2024 SPS Symposium

May 2024, Windsor Locks, CT

The 2024 SPS Symposium boasted an enriching lineup designed to deepen our understanding of SPS and enhance our community support mechanisms.

​

This symposium is not just a conference; it's a testament to the collaborative spirit that drives the Stiff Person Syndrome Research Foundation's mission. The insights and knowledge gained here are crucial as we strive towards innovative treatments and, ultimately, a cure.

bottom of page