Tom Wilson, a resident of Connecticut, cherishes the support of his wife Shannon, their loving dog Lucy, and their two grown sons, Ian and Sean, who happily reside nearby.
Tom brings to the table over 25 years of experience in marketing and finance. In 2011, following years of persistent back pain and anxiety, he was diagnosed with Stiff Person Syndrome (SPS). The severity of his condition led him to take full disability that same year, and he began Intravenous Immunoglobulin (IVIG) therapy about nine years ago.
Despite his health challenges, Tom finds solace in playing the guitar and stays connected to his professional roots by tuning into the finance channel daily.
Tom joined the Patient Advisory Committee out of a steadfast belief in the Stiff Person Syndrome Research Foundation (SPSRF) as a crucial advocate for individuals afflicted with this debilitating disease. He is also confident that a cure exists, and collectively, we can uncover it.
He is enthusiastic about collaborating with his colleagues on the Patient Advisory Committee. Their shared objective is to bolster the SPSRF's mission—raising awareness, supporting research for improved treatments and a cure for SPS, and fostering a robust community through education and collaboration.