Dentist. Black belt. Traveler. Mom. I thought I was invincible. I was wrong. SPS tried to hijack my life. Instead, it gave me purpose.

National Organization of Rare Diseases: 2022 Platinum Member

We’ve Gone Platinum!

SPSRF Newsletter May 2022 πŸ—ž Big News: The Stiff Person Syndrome Research Foundation is now officially a platinum member of The National Organization for Rare Disorders (NORD)! NORD Platinum level membership represents the highest level of integrity and transparency for patient advocacy organizations involved in medical research, drug development, medical education, and registries in the…

National Organization of Rare Diseases: 2022 Platinum Member logo

Why We’ve Gone Platinum

You have to sell a million records for an album to go platinum. It’s a huge accomplishment! And we’re feeling that way about our recent designation as platinum-level members of NORD! Platinum membership represents the highest level of integrity and transparency for patient advocacy organizations involved in medical research, drug development, medical education, and registries.…