We're thrilled to bring you our latest updates and delve deeper into the strides we've made together. Each section below aims to provide you with a richer understanding of our current endeavors and where your invaluable support is taking us.
We have a lot to share this month, so let's dive in!
AWARENESS
A Clear Vision: Our Strategic Goals
We've always believed in transparent communication with our community. That's why we've carefully crafted a detailed infographic to highlight our ongoing strategic initiatives. Take a few minutes to review our infographic to understand our immediate objectives and future aspirations.
View our comprehensive guide here.
Every donation helps The SPSRF reach its goal of finding a cure.
DONATE
Join us in raising funds and supporting our mission!
NEWS
Unveiling Our Revamped SPSRF Website
We're thrilled to announce the launch of our freshly redesigned website! Our primary goal with this new platform is to streamline your experience, ensuring that important information is just a click away. Beyond its user-friendly interface, the website has been optimized to adapt seamlessly to our future online initiatives, reflecting our commitment to staying ahead in the digital age.
Explore our new online home here.
FUNDRAISING
Understanding Your Donations' Impact
Your generous contributions breathe life into our mission. To maintain your trust, we believe it's essential to demonstrate how your funds are allocated and used. From spearheading a future research roadmap to driving awareness of SPS and educating the public, see how every dollar is deployed.
Dive into the detailed breakdown with our graph.
EDUCATION
A Deep Dive into Occupational Therapy & SPS
A key component of managing SPS is understanding the potential benefits of Occupational Therapy. We're excited to spotlight Erin Mullen and Melissa Mushala's presentation from the 2023 SPS Patient Conference. This session offers a blend of expertise, practical insights, and hope for SPS patients and their families.
Click here to gain insights from the presentation.
OUR STORIES
David Axelrod's SPS Journey
A key component of managing SPS is understanding the potential benefits of Occupational Therapy. We're excited to spotlight Erin Mullen and Melissa Mushala's presentation from the 2023 SPS Patient Conference. This session offers a blend of expertise, practical insights, and hope for SPS patients and their families.
Read David's inspiring journey here.
ONE LAST THING
Celebrating Annie McDonnell's Literary Contribution
Annie McDonnell is not just an SPS patient; she's a beacon of hope, resilience, and passion. A voracious reader and advocate for authors, Annie's recent book, "Annie's Song," is a testament to her fighting spirit against SPS and other rare conditions. Beyond its heartwarming collection of poems and short stories, the book supports multiple causes, including the SPSRF!
Thank you, Annie, for your continuing generosity and support of the SPSRF!
Purchase Annie's Song here.
Join us in raising funds and supporting our mission!
DONATE
Thank you for being the pulse of our community. Together, we're not just dreaming of a brighter future - we're building it.
Stay engaged, stay connected, and, most importantly, stay hopeful.