Tara and Meg - Kicking for SPS Awareness, Research

#KickingSPS

SPSRF Newsletter February 2021 I can’t believe it’s the end of February! We have been rockin’ and rollin’ and we’re about to get kickin’. For Rare Disease Day, February 28th, The National Organization for Rare Disorders (NORD) published my story about surviving this crazy condition that uprooted my life! Hopefully this information can help you or anyone…

Participants in the #547 Challenge

What a Difference a Year Makes!

One year ago, when I formed this foundation to fund critical research needed to discover better treatments and a cure, I didn’t realize how energizing, exhausting, endearing, and awe-inspiring this year would be. I am forever grateful to all of you for joining me on this journey.As we wrap up the year — the most…