Describe your life at your healthiest point. I’ve always been huge into volunteering, so I volunteered at hospice and the local ambulance. But, truly college was my healthiest time in life, before any autoimmune issue arose. I ran at least six miles a day. I felt strong. How many years before your diagnosis were you…
Describe your life at your healthiest point. Probably before elementary school started even though I already started to have aches and pains due to an undiagnosed genetic condition called EDS (Ehlers-Danlos Syndrome). How many years before your diagnosis were you experiencing Stiff Person Syndrome (SPS) symptoms? 6 years. Describe your most debilitating symptoms. Being stiff…
Describe your life at your healthiest point. I was busy pursuing the American dream, juggling a successful career in tech, traveling the country, meeting celebrities, and striving for perfection as a homemaker to my husband and young daughter. I loved hosting people and always had a home where anyone could come in and feel cared…
Describe your life at your healthiest point. Being able to go out for a short (very short) walk without my cane as well as playing with my 3 dogs! How many years before your diagnosis were you experiencing Stiff Person Syndrome (SPS) symptoms? Ten to fifteen years. I’m 24 years old today. Describe your most…
Describe your life at your healthiest point. My work as an inventory control and purchasing manager and now a data analyst was rewarding and fulfilling, growing a wholesale distribution business. I was constantly busy in my woodshop making keepsakes for my grandchildren. At age 60, while competing with my sons in Obstacle Course Races like…