I’ve worked in the nonprofit sector for over 20 years, and many of those years have proudly been under the umbrella of Fundraising. I absolutely love supporting a worthy cause! However, while many people hear the word fundraising and immediately think of money, I tend to think of relationships first. And that is why I…
You have to sell a million records for an album to go platinum. It’s a huge accomplishment! And we’re feeling that way about our recent designation as platinum-level members of NORD! Platinum membership represents the highest level of integrity and transparency for patient advocacy organizations involved in medical research, drug development, medical education, and registries.…
After retiring from the Smithsonian’s National Museum of the American Indian, moving across the country from Washington, DC, to Minneapolis, MN, and experiencing my own cardiac health crisis, volunteering at The SPSRF has been a lifeline for me. Helping to create a fundraising program for The SPSRF gives me a sense of connection and purpose.…
There is a history behind #Move4Rare which brings us to this moment. With SPS, many of us have difficulty moving. We use walkers, wheelchairs, and some of us are bedridden. So why would we start a movement to move when we cannot? Mary Ann told us a terrifying story. When startled one of her legs…