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10/10 This Good Boy Baxter Wore It Best In The TeamSPS T-Shirt Contest
The CDCN has partnered with the Chan Zuckerberg Initiative to expand our work on drug repurposing for the rare disease community. The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing. If you’d like to join us in this important work as a rare disease organization, patient, loved one of a patient, physician, or researcher learn more here: https://cdcn.org/roadmap/ and don't forget to participate here: bit.ly/repurposingsurvey
Darrel Cherry, author of The Tin Man blog, has SPS
Surrounded by Superheroes at the Power Train Rockville Fundraiser Bootcamp
Janie Lees laughing with her granddaughter
Happy Birthday Tara!
Tara and Dr. Newsome working on the infamous 19 vials of blood
Jacqui Atkinson - Author of One in a Million
Tara will be speaking at NORD's Living Rare, Living Stronger Patient and Family Forum
Tara Zier, Founder & CEO of Stiff Person Syndrome Research Foundation, presents with Dr. Scott Newsome at NORD's 2021 Living Rare, Living Stronger Interactive Virtual Forum June 26-27. Register for free and join them for the interactive Q&A
Joy Lwangu - her SPS was undiagnosed for 15 years.
Washington Post article by Sandra Boodman - Dentist's Viselike Pain Signaled Nearly Invisible Disorder
The SPSRF wishes you ✨hope✨
SoMoBreathe Fundraiser for The Stiff Person Syndrome Research Foundation
Tara Zier and her children
Tara and Meg - Kicking for SPS Awareness, Research
Shane James kicks off his epic 547-mile trek criss-crossing Tasmania to raise awareness of and funds for Stiff Person Syndrome research. He got a little support from the boys in blue.
PurrrfectCatmasGift - Shop The Stiff Person Syndrome Research Foundation's Limited Edition Traversing Tassie Store Now for your holiday gifts!
#547Challenge to shine a light on SPS
Shane's map of his Traversing Tassie route
Announcing TTX2 - Traversing Tassie! The keystone fundraising event of the year for The Stiff Person Syndrome Research Foundation, runner and SPS patient Shane James will be running 547 miles across Tasmania and back shining a light on SPS. He is generously donating all funds raised to The Stiff Person Syndrome Research Foundation.
Tara Zier and Shane James on a Traversing Tassie planning call
TTX2 - Traversing Tassie: Shining a Light on SPS. A once-in-a-lifetime fundraiser to raise awareness of SPS and money for research to find a cure.
RUNNING FOR RESEARCH: A new Stiff Person Syndrome research foundation has motivated Shane James to take on a new challenge. Picture: Brodie Weeding
Tara, Founder of The Stiff Person Syndrome Research Foundation, taking a cold water plunge for science
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