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L.K. Ortiz, with her husband and two children at the library
Alison Lafferty - powering through with SPS
Amazon Smile Logo with the text Choose Us!
The Stiff Person Syndrome Research Foundation Medical Advisory Board Member Marinos Dalakas is on the Neurology Minute podcast.
Lea Jabre Fayad at her wedding
A Medical Unicorn? Meet Joey Sample
Elaine and her niece Kelsey at a 5k run for charity
Last chance for a soundbath gift with your donation of $100 or more
SPS Patient Stories: Michael Weiss
Mary competing in the bike portion of an ultra.
Steven Schartel - before SPS and after
Calling all GAD-positive SPS patients! Stanford IGNITE study
Tara and her son Cameron
Debrief: Rare As One Annual Meeting 2022
Jenna's Move4RArE Half-Marathon
Can stress activate SPS? Learn more from Dr Scott Newsome
Click on the pic to read more about our rare (and amazing!) leader, Tara Zier.
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Alexandra Stamatapoulou
7,000 rare diseases, one community fighting for cures. We’re excited to be part of the @ChanZuckerbergInitiative’s #RareAsOne Network
The CDCN has partnered with the Chan Zuckerberg Initiative to expand our work on drug repurposing for the rare disease community. The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing. If you’d like to join us in this important work as a rare disease organization, patient, loved one of a patient, physician, or researcher learn more here: https://cdcn.org/roadmap/ and don't forget to participate here: bit.ly/repurposingsurvey
Darrel Cherry, author of The Tin Man blog, has SPS
Janie Lees laughing with her granddaughter
Happy Birthday Tara!
Jacqui Atkinson - Author of One in a Million
Joy Lwangu - her SPS was undiagnosed for 15 years.
The SPSRF wishes you ✨hope✨
Tara Zier and her children
Any one of us can change the world. When we come together, we can unleash miracles. Unleash A Miracle - Donate to The Stiff Person Syndrome Research Foundation Today
#TeamSPS runs the NYC Marathon this weekend - Donate and support them today!
10/10 This Good Boy Baxter Wore It Best In The TeamSPS T-Shirt Contest
Surrounded by Superheroes at the Power Train Rockville Fundraiser Bootcamp
Tara and Dr. Newsome working on the infamous 19 vials of blood
Tara will be speaking at NORD's Living Rare, Living Stronger Patient and Family Forum
Tara Zier, Founder & CEO of Stiff Person Syndrome Research Foundation, presents with Dr. Scott Newsome at NORD's 2021 Living Rare, Living Stronger Interactive Virtual Forum June 26-27. Register for free and join them for the interactive Q&A
Washington Post article by Sandra Boodman - Dentist's Viselike Pain Signaled Nearly Invisible Disorder
SoMoBreathe Fundraiser for The Stiff Person Syndrome Research Foundation
Tara and Meg - Kicking for SPS Awareness, Research
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Shane James kicks off his epic 547-mile trek criss-crossing Tasmania to raise awareness of and funds for Stiff Person Syndrome research. He got a little support from the boys in blue.
#547Challenge to shine a light on SPS
Announcing TTX2 - Traversing Tassie! The keystone fundraising event of the year for The Stiff Person Syndrome Research Foundation, runner and SPS patient Shane James will be running 547 miles across Tasmania and back shining a light on SPS. He is generously donating all funds raised to The Stiff Person Syndrome Research Foundation.
TTX2 - Traversing Tassie: Shining a Light on SPS. A once-in-a-lifetime fundraiser to raise awareness of SPS and money for research to find a cure.
Tara, Founder of The Stiff Person Syndrome Research Foundation, taking a cold water plunge for science
PurrrfectCatmasGift - Shop The Stiff Person Syndrome Research Foundation's Limited Edition Traversing Tassie Store Now for your holiday gifts!
Shane's map of his Traversing Tassie route
Tara Zier and Shane James on a Traversing Tassie planning call
RUNNING FOR RESEARCH: A new Stiff Person Syndrome research foundation has motivated Shane James to take on a new challenge. Picture: Brodie Weeding
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