Become a monthly donor! You set the amount to give, and you can cancel anytime. For the same amount of effort as a one-time donation, a monthly donation provides a reliable source of support for The Stiff Person Syndrome Research Foundation. Monthly donations are easy, affordable, and more impactful.

Check out this page with a how-to video and instructions.

In our first two years, we donated $90,000 raised for research to Johns Hopkins Stiff Person Syndrome Center. As of late 2022, the organization is focused on creating a Patient Registry/Natural History Study to facilitate research for better treatments and a cure. We remain committed to raising awareness of SPS, especially among primary care physicians and neurologists, to reduce the time to diagnosis and the suffering.

Yes, there are many ways to give to The Stiff Person Syndrome Research Foundation.

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Be a fundraiser.

Create a Facebook fundraiser for The SPSRF easily by following the steps outlined here.

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Give through your Donor-Advised Fund.

You have the flexibility to recommend how much and how often money is gifted to The SPSRF. Please be sure to use our legal name, The Stiff Person Syndrome Research Foundation Inc., and federal tax identification number 84-2291780.

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See if your company participates in a corporate match to your charitable donations. 

Many employers will match — sometimes even double or triple! — your donation.

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Raise awareness. 

Follow The SPSRF on Facebook, Instagram, Twitter, and LinkedIN so you can share awareness-building posts in your network. SPS is said to strike one in a million people, and for each person with SPS we need every one of those million other people aware of and supporting the research for a cure.

The Stiff Person Syndrome Research Foundation is a 501(c)3 nonprofit, tax-exempt organization designated by the Internal Revenue Code. When you contribute over $5 to The SPSRF, you will receive a charitable tax receipt for income tax purposes.

The Stiff Person Syndrome Research Foundation takes every precaution to protect our donor’s information. When you submit sensitive information via our website, your information is protected both on- and off-line. We use industry standard security protocols to keep you, and your information, safe.

To contact us, please email info@stiffperson.org.

The Stiff Person Syndrome Research Foundation is recognized as a tax-exempt charitable organization under section 501(c)3 of the Internal Revenue code.

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To claim a donation as a deduction on your United States taxes, please keep your email donation receipt as the official record of your donation. You will receive it via email upon successful completion of your donation.

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For reference, The SPSRF employer identification number (EIN) is 84-2291780.

If you created a monthly donation before November 12, 2022, you can update your contribution and access your donation history by visiting your Donation History page here.

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If you created a monthly donation November 12, 2022 or after, you can update your contribution and access your donation history by logging into your Kindful account.