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The Stiff Person Syndrome Research Foundation
Breaking through barriers to find a cure.
The Stiff Person Syndrome Research FoundationThe Stiff Person Syndrome Research Foundation
  • Understanding SPS
    • SPS 101
      • Symptoms of SPS
      • Diagnosing SPS
      • Types of SPS
      • Treatments for SPS
    • Patient Stories
      • Lea F.
      • 2022
      • 2021
      • 2020
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      • 5 Things to Help Deal with a Rare Disease
      • How to Prepare for Doctor Appointments
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      • Ask the Neurologist
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Recent Posts
  • My SPS Story: Steven S.
  • Connecting to Find a Cure
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  • A Day I Will Never Forget
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    EIN 84-2291780


    Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.


    2022 Platinum Member of the National Organization of Rare Diseases
    2022 Member of the Global Genes Advocacy Alliance
    The Stiff Person Syndrome Research Foundation is a Top-Rated Great Nonprofit in 2022

     

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    8621 Burdette Road
    Bethesda, MD 20817
    USA

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    Yujie Wang, M.D. reviewed this content for medical accuracy.Medically reviewed by Yujie Wang, M.D. 10/18/21
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