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The Stiff Person Syndrome Research Foundation
Breaking through barriers to find a cure.
The Stiff Person Syndrome Research FoundationThe Stiff Person Syndrome Research Foundation
  • Understanding SPS
    • SPS 101
      • Symptoms of SPS
      • Diagnosing SPS
      • Types of SPS
      • Treatments for SPS
    • Patient Stories
      • Lea F.
      • 2022
      • 2021
      • 2020
    • Patient Advocacy
      • 5 Things to Help Deal with a Rare Disease
      • How to Prepare for Doctor Appointments
      • Face Sheet for Doctor Appointments
      • NORD Rare Action Network
    • Additional Resources
      • SPS Q&A For Medical Professionals
      • Ask the Neurologist
      • Ask a Primary Care Physician
      • Support for Patients and Caregivers
      • Medical Institutions
      • Research Articles
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  • About the Foundation
    • News
      • RArE Moments
      • Our Newsletters
      • Media Coverage of the SPSRF
    • Events
      • Ultra 4 Isla
      • #Move4Rare
      • SPS Awareness Day
        SomoBreathe Soundbath
      • Share Your Power With Power Train Rockville
      • Traversing Tassie 2020
    • About
      • Our Founder’s Story
      • Board of Directors
      • Medical Advisory Board
      • Organization Financials
      • Work with The SPSRF
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  • Resources
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    • Our Newsletters
    • RArE Moments
  • Events
    • Ultra 4 Isla
    • #Move4Rare
  • About Us
    • Work with The SPSRF
    • Medical Advisory Board

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EIN 84-2291780


Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.


2022 Platinum Member of the National Organization of Rare Diseases
2022 Member of the Global Genes Advocacy Alliance
The Stiff Person Syndrome Research Foundation is a Top-Rated Great Nonprofit in 2022

 

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Contact Us

info@stiffperson.org


8621 Burdette Road
Bethesda, MD 20817
USA

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Yujie Wang, M.D. reviewed this content for medical accuracy.Medically reviewed by Yujie Wang, M.D. 10/18/21
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