We're still buzzing from the energy of the 2024 Stiff Person Syndrome Symposium—a heartfelt thank you to each of you who joined us, both in

We, my wife and I, are grieving the loss of our planned lives and retirement. I miss my woodshop and mountain training runs. I am slowly, re

Being able to go out for a short (very short) walk without my cane as well as playing with my 3 dogs!

I was busy pursuing the American dream, juggling a successful career in tech, traveling the country, meeting celebrities, and striving for p

From the city of Newcastle upon Tyne in England, Jacqui Atkinson spent six years struggling to understand the muscle spasms and chronic pain

In December 2020, Shane James will attempt to traverse, on foot, his native Tasmania and back ... 547mi/880km in all. Listen to Shane explai

Without SPS awareness in the medical community in Kenya, a lack of access to reliable insurance, and her own reluctance early on to undergo

If there is anyone who knows how to navigate a rare disease, it’s Meg Bayer. I recently had the pleasure of connecting with Meg, an amazing