I am Jenna and I am hoping to bring awareness, more research and better treatments for the “One in a Million” autoimmune disease called Stiff Person Syndrome that has afflicted my Mom. It attacks the neurological system, causing spasms, stiffness and pain making it extremely difficult to walk. In a split second your body can stiffen up like a mannequin, causing a fall.
It’s so rare that many doctors have never heard of it. Diagnosis typically takes years. It can present in various parts of the body, affecting everyone differently. It is a Progressive Disease, which has caused my once very active mother to rely on a wheelchair to get around, due to her many falls.
On Sunday, April 24, 2022, I am running the Brooklyn Half Marathon as part of The Stiff Person Syndrome Research Foundation #Move4Rare initiative. I want to raise awareness of SPS and funds to promote education and sponsor research for a cure to SPS. You can join me by making a donation today.