March 2022 – A thoughtful interview about invisible disabilities that we hope will help the next person get a proper diagnosis, find good doctors, and discover new purpose. 
Many thanks to Jess Stainbrook, Invisible Disabilities Association for shining a spotlight on SPS.
February 2022 – February 28 is Rare Disease Day: the perfect time to bring you encouraging news Dr. Tara Zier’s foundation which recently landed a large grant through the renowned Chan Zuckerberg Initiative to help her group push for better treatments and maybe, one day, a cure.
Fall 2021 – Buffalo Healthy Living featured a piece where Anna B opens up about living with Stiff Person Syndrome and her strategies for carrying on in the face of a little-known progressive autoimmune disease.
Summer 2021 – The Virginia Commonwealth University School of Dentistry featured Tara and her story in their Summer 2021 Alumni issue to help raise awareness and funds for research into Stiff Person Syndrome.
May 2021 – Medical Mysteries’ Sandra Boodman covers how doctors’ skepticism of Tara’s anxiety almost led them to miss that her viselike pain signaled a nearly invisible disease — Stiff Person Syndrome.
February 2021 – Dr. Maggie Yu discusses the role trauma plays on triggering the immune system, the struggle to get diagnosis, the empowerment it takes to find and partner with functional and holistic providers with Tara Zier.
February 2021 – Bethesda Living turns to The Stiff Person Syndrome Research Foundation founder Tara Zier for insight and explanation of The Awareness You Need: Stiff Person Syndrome.
January 2021 – On the opposite side of the world, 52-year-old ultra runner Shane James completed a 24-day trek Friday to benefit a foundation in the DC region, hoping to find a cure for a rare disease he shares with Dr. Tara Zier of Bethesda.
January 2021 – Southern Cross TV covers the penultimate day of Traversing Tassie, ultra-runner Shane James’ epic 880km run to raise awareness and funds for The Stiff Person Syndrome Research Foundation.
December 2020 – The Examiner covers Shane James’ milestone of completing the first leg of Traversing Tassie – running from Burnie to Eddystone Point – in eight days.
December 2020 – Voice of America covers Shane James’ and Tara Zier’s partnership to create Traversing Tassie and raise awareness of Stiff Person Syndrome worldwide.
November 2020 – Kensington Neighbors features Tara as an Expert Contributor with the article on Stiff Person Syndrome: Silly Name, Serious Disease!
October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.
April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org
April 2019 – The Mayo Clinic published a story about Tara’s frightening and frustrating search for the right diagnosis after she was transported to its Minnesota headquarters by air ambulance.
May 2018 – ABC7 in Washington, DC interviewed Tara and her neurologist at Johns Hopkins about the role trauma plays in triggering auto-immune disease.
SPSRF Newsletter September 2022 It is not easy to watch the video from our featured patient this month. The pain there is undeniable. I connected…
I’ve worked in the nonprofit sector for over 20 years, and many of those years have proudly been under the umbrella of Fundraising. I absolutely…
SPSRF Newsletter July 2022 I am so proud to announce the formation of The SPSRF Medical Advisory Board, consisting of three of the top SPS…
SPSRF Newsletter May 2022 🗞 Big News: The Stiff Person Syndrome Research Foundation is now officially a platinum member of The National Organization for Rare…
