We’ve Gone Platinum!
SPSRF Newsletter May 2022 🗞 Big News: The Stiff Person Syndrome Research Foundation is now officially a platinum member of The National Organization for Rare…
March 2022 – A thoughtful interview about invisible disabilities that we hope will help the next person get a proper diagnosis, find good doctors, and discover new purpose. Many thanks to Jess Stainbrook, Invisible Disabilities Association for shining a spotlight on SPS.
January 2021 – Southern Cross TV covers the penultimate day of Traversing Tassie, ultra-runner Shane James’ epic 880km run to raise awareness and funds for The Stiff Person Syndrome Research Foundation.
December 2020 – Voice of America covers Shane James’ and Tara Zier’s partnership to create Traversing Tassie and raise awareness of Stiff Person Syndrome worldwide.
October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.
April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org
SPSRF Newsletter May 2022 🗞 Big News: The Stiff Person Syndrome Research Foundation is now officially a platinum member of The National Organization for Rare…
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After retiring from the Smithsonian’s National Museum of the American Indian, moving across the country from Washington, DC, to Minneapolis, MN, and experiencing my own…
SPSRF Newsletter March 2022 Who’s feeling exhausted under the weight of wearing a bunch of different hats? My hand is raised and I know others…