The SPSRF Newsletter: May 2023
Welcome to the May 2023 edition of The Stiff Person Syndrome Research Foundation (The SPSRF) newsletter. This newsletter will motivate you to get involved and…
September 2022 – “We have become closer through this,” The SPSRF founder Tara Zier tells “Dadvocate” Adam Johnson in this Parents as Rare podcast, an unvarnished look at life as a rare disease patient.
March 2022 – A thoughtful interview about invisible disabilities that we hope will help the next person get a proper diagnosis, find good doctors, and discover new purpose. Many thanks to Jess Stainbrook, Invisible Disabilities Association for shining a spotlight on SPS.
January 2021 – Southern Cross TV covers the penultimate day of Traversing Tassie, ultra-runner Shane James’ epic 880km run to raise awareness and funds for The Stiff Person Syndrome Research Foundation.
December 2020 – Voice of America covers Shane James’ and Tara Zier’s partnership to create Traversing Tassie and raise awareness of Stiff Person Syndrome worldwide.
October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.
April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org
May 2018 – ABC7 in Washington, DC interviewed Tara and her neurologist at Johns Hopkins about the role trauma plays in triggering auto-immune disease.
Welcome to the May 2023 edition of The Stiff Person Syndrome Research Foundation (The SPSRF) newsletter. This newsletter will motivate you to get involved and…
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