December 2020 – The Examiner covers Shane James’ milestone of completing the first leg of Traversing Tassie – running from Burnie to Eddystone Point – in eight days.
November 2020 – Kensington Neighbors features Tara as an Expert Contributor with the article on Stiff Person Syndrome: Silly Name, Serious Disease!
October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.
April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org
April 2019 – The Mayo Clinic published a story about Tara’s frightening and frustrating search for the right diagnosis after she was transported to its Minnesota headquarters by air ambulance.
May 2018 – ABC7 in Washington, DC interviewed Tara and her neurologist at Johns Hopkins about the role trauma plays in triggering auto-immune disease.
One year ago, when I formed this foundation to fund critical research needed to discover better treatments and a cure, I didn’t realize how energizing,…
SPSRF Newsletter December 2020 Today’s the day! Shane takes off on his grueling 547-mile trek criss-crossing Tasmania to raise awareness and funds for SPS! We…
When we were planning Traversing Tassie, Shane sent over his ideas for a route and we at The SPSRF loved how the email below is…
SPSRF Newsletter November 2020 Here we are: November 2020! What an amazing month we have had! I was at Johns Hopkins for my monthly visit,…