What a Difference a Year Makes!
One year ago, when I formed this foundation to fund critical research needed to discover better treatments and a cure, I didn’t realize how energizing,…
October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.
April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org
One year ago, when I formed this foundation to fund critical research needed to discover better treatments and a cure, I didn’t realize how energizing,…
SPSRF Newsletter December 2020 Today’s the day! Shane takes off on his grueling 547-mile trek criss-crossing Tasmania to raise awareness and funds for SPS! We…
When we were planning Traversing Tassie, Shane sent over his ideas for a route and we at The SPSRF loved how the email below is…
SPSRF Newsletter November 2020 Here we are: November 2020! What an amazing month we have had! I was at Johns Hopkins for my monthly visit,…