RUNNING FOR RESEARCH: A new Stiff Person Syndrome research foundation has motivated Shane James to take on a new challenge. Picture: Brodie Weeding

October 2020 – The Advocate of Australia wrote the first story about Shane James’ historic race, Traversing Tassie, and his plan to donate all proceeds to The SPSRF.

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          April 2020 – Interview on Facebook Live announcing the launch of The Stiff Person Syndrome Research Foundation website, www.stiffperson.org

          Tara Zier and her children

          April 2019 – The Mayo Clinic published a story about Tara’s frightening and frustrating search for the right diagnosis after she was transported to its Minnesota headquarters by air ambulance.

          ABC7 News: Scared Stiff - Emotional Trauma may have triggered Maryland woman's 'human statue' disease

          May 2018 – ABC7 in Washington, DC interviewed Tara and her neurologist at Johns Hopkins about the role trauma plays in triggering auto-immune disease.