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SPSRF News

The SPSRF September 2023 Newsletter

The SPSRF September 2023 Newsletter

Your support has been our guiding star, and we're excited to share the latest stories, insights, and opportunities to make a difference. Each section aims to provide a richer understanding of our current endeavors and where your invaluable support is taking us.

We have tons to share this month, so let's get started!


AWARENESS

A PATH FORWARD: OUR STRATEGIC VISION

At The SPSRF, we're fostering a culture of transparency and inclusivity. That's why we've created this PDF document to share our forward-looking strategic vision. We invite you to spend a few moments exploring this document, gaining insight into The SPSRF's trajectory and the goals for our future!

View our vision document here.


Every donation helps The SPSRF reach its goal of finding a cure.

DONATE 

Join us in raising funds and supporting our mission!


EDUCATION

UNLOCKING THE SECRETS TO MANAGING SPS

Tara Zier, our founder, recently shared her wisdom at the most recent Stiff Person Syndrome Patient Conference. Her key takeaways are: 

  1. Purpose: Cherish a life purpose.
  2. Preparation: Master your story for concise sharing.
  3. Mindset: Celebrate your strengths.
  4. Boundaries: Guard your time and energy.

Dive deeper into Tara's insights!


FUNDRAISING

AMPLIFY YOUR IMPACT

Did you know many companies match their employees' charitable donations? This means your contribution to The SPSRF could be doubled! It's a simple yet powerful way to further our mission. Check with your HR today and make your donation go the extra mile.

Learn more here (under the FAQ section).


SOCIAL MEDIA

TURN ANY DAY INTO A DAY OF HOPE

With September and October being peak birthday months, why not celebrate with a cause? Rally your friends and family to support The SPSRF through a Super-75 Facebook Fundraiser. It's a joyous way to spread awareness and hope.

We'd also like to thank everyone who hosted a Facebook Fundraiser to benefit The SPSRF in September! The newest members of our Super-75 group include Lisa Mazza, Juanita Quincy Atmore, Ad┼Źnia Taylor, Gabrielle Skye, Mahasen Saeed, Maria Cerreto, Collette Duke, Ted Murphree, Joshua Burzynski, Step Smith, Natalie Jensen, Allison Frazier Finley, Carol Malloch, and Maryann Skula.

Thank you all!

Watch this video to learn how to start your fundraiser.


OUR STORIES

RACHEL HALLSTROM'S SPS JOURNEY

Rachel's journey with SPS is a beacon of resilience. From confronting her diagnosis to navigating its challenges, her story is a testament to the human spirit's strength. Dive into Rachel's world and discover the power of community and hope.

Read Rachel's inspiring story here.


ONE LAST THING

WEAR YOUR SUPPORT: MELANIE'S SPS-THEMED RIBBONS

Melanie from My SPS Journey has crafted a symbol of our shared mission: beautiful SPS-themed ribbons. Every purchase directly supports The SPSRF. Wear your ribbon with pride and be a part of our story.

Thank you, Melanie, for your continuing generosity and support of the SPSRF!

Get Your Ribbon & Show Support. (Melanie has provided instructions for ordering at the bottom of this post).


Join us in raising funds and supporting our mission!

DONATE

Thank you for being an integral part of our journey. Every step we take, every discovery we make, is possible because of you.

Stay connected, stay inspired, and let's continue to create a world full of hope.