FOR IMMEDIATE RELEASE Bethesda, MD – January 20, 2025 – The Stiff Person Syndrome Research Foundation (The SPSRF) is proud to announce its support for increasing awareness and enrollment of Kyverna Therapeutics’ groundbreaking clinical trial for Stiff Person Syndrome (SPS).
This initiative marks a significant step forward in advancing research and developing novel treatments for individuals living with this debilitating, ultra-rare autoimmune neurological condition.
Kyverna Therapeutics is leading an innovative clinical trial designed to evaluate a potential therapeutic approach for SPS.
The trial represents a critical opportunity to better understand and address the disease, which is often misdiagnosed and lacks effective treatments or a cure.
As part of its mission to accelerate research and provide hope to those impacted by SPS, The SPSRF is committed to amplifying awareness about this vital study.
The SPSRF encourages patients, caregivers, and healthcare providers to explore participation in this clinical trial, which is currently enrolling eligible participants.
By raising awareness and facilitating connections between patients and research teams, The SPSRF aims to strengthen the collective effort to find treatments and, ultimately, a cure for SPS.
"At The Stiff Person Syndrome Research Foundation, we're deeply committed to supporting innovative research and connecting patients to potential opportunities for treatment. We believe this trial has the potential to bring us closer to the breakthroughs that individuals living with SPS desperately need."
Dr. Tara Zier
The SPSRF Founder and SPS Patient
For more information about the Kyverna Therapeutics clinical trial, including eligibility criteria and enrollment details, visit https://stiffpersonsyndrometrials.com.
The SPSRF remains steadfast in its mission to fund cutting-edge research, provide educational resources, and empower the global SPS community.
To learn more about The SPSRF’s initiatives and how you can support this critical work, visit www.stiffperson.org.
About The Stiff Person Syndrome Research Foundation (The SPSRF)
The Stiff Person Syndrome Research Foundation is the only organization dedicated to raising awareness, funding groundbreaking research, and providing resources for those affected by Stiff Person Syndrome.
Our mission is to find better treatments and, ultimately, a cure, while building a strong and supportive community for patients and their loved ones.
Media Contact:
Communications, The Stiff Person Syndrome Research
Website: www.stiffperson.org