Living with SPS can feel isolating, but you are not alone. Many individuals and families affected by SPS have created spaces to connect, share experiences, and support one another.
We’re sharing a list of Facebook Support Groups that you may find helpful. While these groups are not affiliated with The Stiff Person Syndrome Research Foundation (The SPSRF), they offer valuable opportunities to engage with others who understand the challenges of SPS:
Facebook Support Groups:
These groups can provide:
A space to share personal experiences
Practical tips for symptom management
Emotional support and understanding
Connections to others navigating similar journeys
If you’re looking for a way to share and learn from the community, these groups may be a great resource. Please remember to engage respectfully and safely, and note that advice shared in these spaces is not medical advice.
Have you found online support groups helpful? What topics or discussions have been the most meaningful for you?
If you have other support groups or resources that you’ve found helpful, please share them below so we can continue building connections!
#SPSCommunity #SupportGroups #StrongerTogether #SPSAwareness #TheSPSRF
