We know that mobility challenges are a significant part of living with Stiff Person Syndrome (SPS), and finding the right resources to access mobility aids—like wheelchairs—can feel overwhelming.
To help, we’ve put together a resource guide (attached as a PDF) with practical information on:
Organizations to contact: Programs and groups specifically geared toward helping individuals with disabilities access wheelchairs and other mobility aids.
In a future version, we'll add more information such as:
Where to start: Steps to explore insurance, financial assistance programs, and nonprofit organizations that can help cover the cost of a wheelchair.
Tips for navigating the process: What to expect when working with insurance providers or seeking support from charities.
We hope this guide provides a helpful starting point and makes the process of finding mobility solutions a little easier.
We’d love to hear from you:
Have you successfully navigated obtaining a wheelchair or mobility aid? Do you have any tips or advice to share with others?
Are there any organizations or resources that were especially helpful for you?
Let’s use this space to help one another find the support we need to keep moving forward.
Take care,
The SPSRF Team
