Living with SPS can feel overwhelming, but taking charge of your journey is key to managing both your health and daily life. That’s why we’re excited to share the SPS Tipsheet, a practical guide created to help you advocate for yourself, navigate medical appointments, and organize critical information.
What’s inside?
Tips for creating a Face Sheet to keep doctors up to speed quickly.
Guidance on finding a superstar primary care doctor and specialists.
Insights into financial resources, insurance navigation, and workplace accommodations.
Ideas for organizing medical records and communicating effectively with healthcare teams.
Strategies for handling the dreaded “How are you?” conversations and asking for help when you need it most.
📥 Download the SPS Tipsheet PDF here:
You’re not alone in this—this resource is designed to give you actionable steps to feel more in control and supported every day.
Have you found specific tips or strategies helpful in managing your SPS journey? We’d love to hear from you!
Let’s keep this conversation going and empower each other. 💙
#SPSCommunity #PatientAdvocacy #TogetherForSPS
Disclaimer: The content of this Website is provided for informational and educational purposes only, and does not in any way intend to substitute for professional medical advice, diagnosis, or treatment. The content is not intended to be medical advice for any particular person or patient and should not be relied upon as medical advice. You should always seek the advice of a physician or other qualified healthcare provider for medical advice, including any questions you may have regarding diagnosis or treatment of any medical condition.
Contributors to this document include: Jim Weiss, MD; Vered Lewy-Weiss, MD; Tara Zier, DDS and SPS patient.