SPS Fundraisers' Marketplace
Welcome to our Community Fundraisers page, a dedicated space to highlight the incredible efforts of our global Stiff Person Syndrome (SPS) community members in raising awareness and support.
The fundraisers featured here are independently organized by our passionate community and are not officially affiliated with The SPSRF. As such, we are unable to place orders or answer questions regarding these events.
Each entry includes a link to the event page shared by the organizers, where you can find more details and show your support. Check back often to discover new and inspiring fundraising initiatives.
SPS Awareness Zebra Ribbons
Help raise awareness for Stiff Person Syndrome with official ribbons from My SPS Journey, created by Melanie Collazo.
There are two ribbon options available: a ribbon with a clutch pin and stone for $6, and a simpler ribbon with a black safety pin for $5.
Both feature a striking black and silver sparkled zebra print.
Celine Dion SPS T-Shirt
Host: Gabriella Greco & Darren Melchiorre
Join Gabriella Greco and Darren Melchiorre in a special collaboration to raise funds for Stiff Person Syndrome research inspired by the courage and generosity of Celine Dion.
Funds raised from this campaign will be donated to The SPSRF and to the Céline Dion Foundation, specifically earmarked for ongoing SPS research.
Your support in spreading the word and contributing to this campaign would be immensely appreciated.
KY's Candle Care Kits
Support Kylie’s effort to raise funds for SPS research through her soy-based candles and melts! Each candle is crafted with care, featuring essential oils that provide both physical and mental health benefits. Kylie offers a wide variety of options, ensuring there’s something for everyone to enjoy.
A portion of each purchase goes directly to the Stiff Person Syndrome Research Foundation.
"One In A Million; Living with SPS"
Host: Jacqui Atkinson
In this remarkable story, Jacqui shares her journey of enduring years of excruciating pain and muscle spasms without a diagnosis. "One In a Million" is a powerful tale of courage, faith, and, above all, love. Jacqui’s story is a testament to her indomitable spirit and her unwavering focus on hope and heaven.
Proceeds from the sales of this book go directly to The Stiff Person Syndrome Research Foundation. Purchase your copy and be inspired by Jacqui's incredible journey while supporting a vital cause.
Knitted Scarfs & Hats
Host: Joy Lwangu
Support Stiff Person Syndrome research with Joy Lwangu’s beautifully crafted custom scarves and hats. Each piece is personally knitted by Joy and features a special “I Love Someone with Stiff Person Syndrome” embroidery. By purchasing these unique items, you’re not only getting a cozy accessory but also contributing to a meaningful cause. All proceeds from the sales go directly to The Stiff Person Syndrome Research Foundation.
SPS T-Shirt Fundraiser
Host: Shertori Frappier
Show your support for Stiff Person Syndrome research with Tori Frappier’s custom-designed SPS-Awareness T-shirts. Tori, who has SPS, has created a unique design that’s available in a variety of colors, allowing you to wear your support in style. By purchasing these T-shirts, you’re not only spreading awareness but also helping to advance research efforts. All proceeds from sales go directly to The Stiff Person Syndrome Research Foundation
My Journey With God Through Stiff Person Syndrome (Book)
Author: Tisha Foster
"My Journey with God through Stiff Person Syndrome" is a riveting heartfelt true story about a person living with a rare disease called Stiff Person Syndrome. Tisha Foster gives credit to God for allowing her to live with this debilitating disease that creates triggers, distorts your walking, and creates a muscle spasm that puts you on the ground.It’s a disease that affects one out of every million people and Miss Foster is committed to bringing awareness to the world by sharing the symptoms, the hardship that it brings and how it affects the people around an individual living with this disability. Take a ride through the fabulous life she once lived before being diagnosed with SPS, and the wonderful life she now lives with it, through the Grace of God!
Celine Dion UK Fans Personalized Keyring Fundraiser
Host: Celine Dion UK Fans
Celine Dion UK fans are excited to support The SPSRF with this keyring fundraiser.
The keyrings are apple-shaped with personalized engraving and a photo insert for your favorite photo of Celine! The cost is £13.99, which includes postage to UK Mainland.
The keyrings are of high-quality metal and zinc and will be the perfect Christmas gift for loved ones this year!
Keyrings are already available and ready to ship!
Proceeds will support SPS research through The SPSRF.