SPS Resources

SPS Literature & Publication Review

• Click here to review our curated collection of literature and publications focused on SPS research.

Ask the Doctor

Our "Ask the Doctors" section provides valuable insights from leading neurologists and primary care physicians on Stiff Person Syndrome (SPS). It features answers to common questions about symptoms, diagnostic tests, treatment approaches, and the genetic aspects of SPS.

The page includes contributions from experts like Dr. Scott Newsome, highlighting their extensive experience and research. Visit the page to gain a deeper understanding of SPS from medical professionals and explore patient stories and expert advice.

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Access the information here.

Medical Institutions

• John Hopkins Medicine Stiff Person Syndrome Center

• Mayo Clinic, Rochester, MN

• Thomas Jefferson University Hospital

Organizations

• European Alliance of Neuromuscular Disorders

• Genetic and Rare Diseases (GARD) Info Center

• International Parkinson and Movement Disorder Society

• IP&MDS SPS

• National Health Council, American Autoimmune Related Diseases Association

• National Organization for Rare Disorders

Facebook Support Groups (Not Affiliated with The SPSRF)

• Stiff Person Syndrome - SPS Warriors: Virtual Hangouts

• Stiff Person Syndrome Association Online

• Stiff Person Spectrum Disorder (SPS) - Education & Support

• Stiff Person Syndrome – Living Forward

• Stiff Person Syndrome – The Official UK and Ireland Support Group

• SPS Sisters

Patient Web Sites (Not Affiliated with The SPSRF)

• My Life with Stiff Person Syndrome (Facebook Page)

• Stiff Person Syndrome (Facebook Page)

• Larry B. Mellick, MD - YouTube video about a patient's experience with SPS