Support The SPSRF
Join The SPSRF's mission to end SPS. Your generosity fuels critical research and makes life-saving progress possible.
Your donations support SPS research, raises awareness, and strengthens our community.
Ways to Give
Become A Rare Gem
Rare Gems support The SPSRF with donations or fundraising of $1,000 or more each year. As a member, you’ll enjoy various benefits, depending on your level of financial support, including early access to event registration, in-person and virtual discussions, access to talks with SPSRF-funded researchers, and personalized recognition opportunities.
Frequently Asked Questions
What is the best way to support The Stiff Person Syndrome Research Foundation?
Become a monthly donor! You set the amount to give, and you can cancel anytime. For the same amount of effort as a one-time donation, a monthly donation provides a reliable source of support for The Stiff Person Syndrome Research Foundation. Monthly donations are easy, affordable, and more impactful.
How does The Stiff Person Syndrome Research Foundation use funds?
In our first two years, we donated $90,000 raised for research to Johns Hopkins Stiff Person Syndrome Center. As of late 2022, the organization is focused on creating the SPS Global Registry & Natural History Study to facilitate research for better treatments and a cure. We remain committed to raising awareness of SPS, especially among primary care physicians and neurologists, to reduce the time to diagnosis and the suffering.
Will I get a receipt?
The Stiff Person Syndrome Research Foundation is a 501(c)3 nonprofit, tax-exempt organization designated by the Internal Revenue Code. When you contribute to The SPSRF, you will receive a charitable tax receipt for income tax purposes.
Is my donation secure?
The Stiff Person Syndrome Research Foundation takes every precaution to protect our donor’s information. When you submit sensitive information via our website, your information is protected both on- and off-line. We use industry standard security protocols to keep you, and your information, safe.
How can I contact you?
To contact us, please email info@stiffperson.org.
Is my donation tax deductible?
The Stiff Person Syndrome Research Foundation is recognized as a tax-exempt charitable organization under section 501(c)3 of the Internal Revenue code. To claim a donation as a deduction on your United States taxes, please keep your email donation receipt as the official record of your donation. You will receive it via email upon successful completion of your donation. For reference, The SPSRF employer identification number (EIN) is 84-2291780.
Honoring a Loved One Through Donations
At The SPSRF, we are deeply honored when families choose to support our mission in memory of their loved ones. If you would like to designate The SPSRF as the preferred organization for donations, we are committed to ensuring these contributions remain their legacy.
We understand the importance of transparency and are happy to provide a detailed report to a family representative after receiving donations made in honor of your loved one. This report will include a list of all contributing donors and the total value of these donations. Due to privacy concerns, we cannot provide donation amounts for each individual.
If you are interested in setting up a memorial donation or have any questions, please email our Director of Development, Camryn Wells.