National Organization of Rare Diseases: 2022 Platinum Member

We’ve Gone Platinum!

SPSRF Newsletter May 2022 πŸ—ž Big News: The Stiff Person Syndrome Research Foundation is now officially a platinum member of The National Organization for Rare Disorders (NORD)! NORD Platinum level membership represents the highest level of integrity and transparency for patient advocacy organizations involved in medical research, drug development, medical education, and registries in the…