Join Our Mission

Join our team to make a difference in people’s lives.

This is a pivotal year for The Stiff Person Syndrome Research Foundation (The SPSRF). In 2021 we received a game-changing grant from the Chan Zuckerberg Initiative “Rare as One” program. This amazing support is allowing us to build our organization in so many ways.

Stiff Person Syndrome (SPS) is a rare neurological disease, with no good treatments and no cure. Our mission is to raise awareness of SPS, support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration. We are connecting the SPS community around the world, showcasing patient stories, supporting science, and advocating for greater understanding of the causes of auto-immune disease. This year we are building a medical advisory board, increasing our organizational capacity, and planning an SPS patient registry which is paramount in driving research.

We are always looking for volunteers to support the mission of The SPSRF!

Have skills that could help increase awareness of Stiff Person Syndrome and raise funds to research a cure?


Apply Here