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Ask The Neurologist

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                          What is Stiff Person Syndrome?

                          DR NEWSOME:  SPS is an autoimmune, neurological condition where, even though we don’t know the primary cause, the immune system gets angry and is misdirected to attack the nervous system in a way that causes signs and symptoms we see in patients: horrific spasms, generalized pain, eye movement issues, problems walking, there’s a full spectrum people can experience with this condition.

                          When you are dealing with a neurological disease, there’s a lot of overlap, so that early on in SPS, patients can be in chronic pain but have a normal neurological exam. That’s why some physicians incorrectly consider them psychiatrically unwell. It is a really challenging disability, but at the core is the immune system.

                          Dr. Scott Newsome of the Stiff Person Syndrome Center at Johns Hopkins Medical

                          Dr. Scott Newsome is the leading expert on Stiff Person Syndrome. He has researched the disease for more than a decade, and established the world’s only Stiff Person Syndrome Center at Johns Hopkins Medicine.

                          Get notified when we publish the next installment of our exclusive interview with Dr. Newsome — subscribe to The Stiff Person Syndrome Research Foundation newsletter here.